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Visited by cancer - your experiences, good and bad?

Cancer | Last Active: 1 hour ago | Replies (15)

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@gingerw

@isadora2021 At the moment, I work with multiple myeloma, an incurable blood cancer. And end stage kidney disease, not brought on by that cancer, but an incredibly rare autoimmune disease. Prior to this I was treated for cervical cancer in 1996, and melanoma in 2008.

By becoming my own advocate, researching the best treatment options, listening and sharing with my medical teams, I am here today. Would I wish for another outcome to my journey? Heck, yeah! But the blessing in all of this is the kindness of strangers, now my friends, who have stepped up with me. Those friends include various medical teammates, from the receptionists to phlebotomists to medical assistants to doctors, support groups virtually and in-person when available, and yes even strangers I have met who show concern for the outer effects of my conditions ["Are you okay? Where did those bruises come from? Are you in a domestic violence situation?"] Everyone has taught me it is okay to be vulnerable, and to reach out a hand when needed. And to extend that same hand to help when I see it might make a difference.

Thank goodness for the energy I have when I have it, to do what makes me feel good. Creative endeavors, getting outside to walk, or pull weeds/yardwork. Each month I have blood work for the myeloma, and my kidneys. I try not to be anxious anymore. I am grateful for the daily dialysis that I have to do; it keeps me humble and thankful to have a treatment that allows me to live.
Ginger

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Replies to "@isadora2021 At the moment, I work with multiple myeloma, an incurable blood cancer. And end stage..."

@gingerw Oh my goodness! Thank you for sharing. Heck yeah, me too!

You’ve sure been in the thick of it and your post is so inspirational. So many great takeaways you’ve shared.

I love how you’ve learnt to ask for help when you need it and how you give help when and where you can.

Thank you for the wonderful caring role you play on this forum as a volunteer mentor ❤️‍🩹