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@djewell823

Hi, I’m not sure if you got an answer to your question about whether Mayo could give you a second opinion without it being in-person. I don’t know the answer to that, but I know that Dr Friedman at UC San Diego will do that.
I consulted with both places, by phone at UCSD and in person at Mayo. I chose Mayo, primarily because they could get me in sooner. UCSD has a very efficient process for sending records and doing a phone consult.

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Thank you for the suggestion. Somehow I managed to also discover the UCSD clinic. I sent some of their online literature to my daughter. But we also got a response from Mayo and my daughter is sending all of her information to them. As Colleen said, this is turning out to be a second opinion.

A belated welcome, @djewell823. Thanks for the information and your experience with both UCSD and Mayo Clinic.

What treatment did you have at Mayo Clinic? How are you doing now? Do you return to Mayo for follow-up or follow-up closer to home?