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I have Sjogren's neuropathy of my legs. Anyone try Rituximab?

Neuropathy | Last Active: Jan 27 6:20pm | Replies (19)
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@penn

Hello suetex,
Very difficult moving bowels so I think somehow pressing on my bladder? It's awful. Sojgrens , I drink so much, I try not to, I take,Pilocarpine, is there any other drug for that you know of?
I get IVIG infusions, in fact I had a port put in as my nurse suggested because my veins would roll, it hurt a lot each time. I have S.F.N. also!! Is IVIG helping you? I'm not so sure because of difficulty moving bowels, nerves down there huts so badly.

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Replies to "Hello suetex, Very difficult moving bowels so I think somehow pressing on my bladder? It's awful...."
suetex | @suetex | Jan 25 6:16pm

I'm sorry you're having such a hard time. I had loss of strength in my legs and atrophy and they do seem to be getting stronger. My balance is still awful but I can pick up stuff from the floor. I'm glad you are getting IvIg. It seems to be the only thing that helps Sjogren's, although it does take its time. You might keep track of how much water you drink so you can tell your dr. I wonder if your problem with your nerves in you rectum is part of your neuropathy? Just a thought...No. I don't take anything else for the Sjogren's except courses of Rituximab.

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