Hi everyone, im 54yo & at 39 my son gave me strep. This attacked my heart valve, that i didnt know was biscuspid from birth. Bout 1 percent of the population doesn't know they have it. I was asymptomatic least i thought i was.
I was fortunate to go to rapid city SD where Dr James Oury who ran the ROSS procedure register had just moved. He was new to the hospital. He is now passed and at year 15 i just got this horrible news from a new cardiologist as i had not sone echo's traveling during COVID to care 4 a sick father.
My surgery was 14.2 hrs the longest of its kind in record.
Now i was the largest patient at 340 pound's at the time. The aortic root was damaged w a bleb in it which he fixed and i have a human donor valve. He used my pulmonary valve there now an supposedly even tho im 173 pounds now! Feel good, thought id skate thru this echo n be done!
Cardiologist said your post ejection fracture has gone from 65 percent to 50 to 55 percent. Your ascending aorta is dilated to 52 from some 49 to 50 seven years ago.
Now 46 he said is where surgery is recommended.
I looked i was a flight paramedic an worked in OR yrs in CA. My brother also a critical care medic sent me the Cleveland clinic info saying 30 percent is poor! 40 percent moderate abd 50 to 70 is NORMAL!
So, that said he wants to do a TEE an he had an artificial valve done 3 yrs ago w a gortex root to but i dont know of any physical damage to the valve or compromise of the root. I have been dehydrated lately an stressed wsy out for several yrs from a divorce after 32 yrs.
I was given surgeons name at Mayo, i def want more feedback?
Not that i dont see him as a good credible cardiologist im sure he is. I simply woneer if because he jad 2 surgeries himself an a biscuspid valve to w his own bioprothetic valve needing to be done if i am not getting more of his personal experience an concern in his diagnosis an saying he is 90 percent positive i need a 2nd open heart surgery. Yet Cleveland clinic numbers say 50 post ejection fracture is normal acceptable numbers!
Down from 65 seven years ago idk other then i was 48yrs vs 54 now so is that turning 50+ something that has affected or justify being asymptomatic minus any physical evidence of damage? All input is appreciated I really dont want another major high risk open heart but i also dont want to ignore a truly underlying problem if hydration, sleep, modification of diet n lower stress can reduce the dilation of ascending aorta an be fine? Mt divorce is over so stress has come down drastically and needs a bit of time to probably manifest itself physiologically. Or am i rationalizing? LMK your thoughts?