After multiple spinal fusion surgeries and fractured vertebrae with repeated proximal joint failures, I saw a neurosurgeon at Mayo. He completely removed all my old hardware and did a complete new fusion from T1 to sacrum. Unfortunately, the T1 vertebra fractured almost immediately. I went back 3 months later for a fusion from C2 to T4. Now, 7 months later I am pain free. However, having C2 -sacrum fusion has limited my head range of motion by %50. Obviously, I have no bending in my torso except for at my hips. I can do ADLs and drive. I can walk, take spin classes and do aquafit. I still get tired pretty easily but that is getting better the further out from surgery I get. So sorry you are in so much pain. I hope you can get good relief from surgery.