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Already on oxygen - diagnosed with DIPNECH: What happens next?

Neuroendocrine Tumors (NETs) | Last Active: Feb 4 6:28pm | Replies (23)
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@hopeful33250

Hello @jan355 and welcome to Mayo Connect. I see that @californiazebra has already posted with you. I agree with her response, it is important to seek out a NET specialist and one who is familiar with treating DIPNECH.

A one-time consultation at Mayo Clinic would be a good idea now that you are diagnosed. Here is a link with information about obtaining an appointment, http://mayocl.in/1mtmR63
If you cannot be sent at a Mayo Clinic facility for any reason, here is a list of NET specialists, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.

Often, just a one-time consultation with a specialist can put you on the right road for effective treatment.

I look forward to hearing from you again. Will you keep posting and let us know how you are doing?

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Replies to "Hello @jan355 and welcome to Mayo Connect. I see that @californiazebra has already posted with you...."
jan355 | @jan355 | Feb 2 6:42pm

Money is a huge problem. I've been disabled for 20 years, which hit us hard economically. My husband and I exist on social security with a very small pension from me. We support our daughter, who has multiple health issues, and her two children who are here 4 days a week. That's 5 people living off our SS, with a small help from ACHSS.

It's hard enough to keep the lights on and food on the table.

Besides, now that I am on oxygen I am not sure what they could do. The worst has already happened.

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