What are some ways to try to minimize neuropathy during chemo?

Posted by brighterdays @brighterdays, Apr 13, 2023

Does putting your hands and feet in ice before starting infusion help? What about after your cycle at home? Will continuing to ice it help?

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@turbomom

The instructions on my ice slippers said not to wear them for more than 20 minutes, and my Taxol drip takes an hour. The cold doesn’t bother my feet so much, so I just leave them on the whole hour. No frostbite so far, but they do lose some cold over time.
I do wear a light pair of gloves inside the ice mitts. I have wondered, if it defeats the purpose, but my hands still get pretty cold.
I just did treatment 6 of 12, and so far, I’m OK. Glad to hear of your success! I didn’t do the ice cap - didn’t think I could handle the cold on my head. Yes, most of my hair has left.

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I kept them on my feet the whole hour, no issues. I could not tolerate it on my hands the whole time so had to take breaks.

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I am just beginning chemotherapy Carboplatin and Paclitaxel weekly for 3 months. I’m using multiple sets of ice mittens/socks from Amazon and a Cold Cap ( available at my local facility) to help with Neuropathy and hair loss. I start ice 20 minutes before chemo, during and for 90 minutes after. Then I am walking 3 miles a day. (so far)) Fingers crossed that this helps. I will keep everyone posted. 🙏🏻🤞I do take my extremities out for a few minutes when they get too cold.

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It seems a lot of you had better Infusion center than I had because no one ever suggested or recommended anything. I was told I would loose my hair but no one ever suggested a cold cap. While neuropathy was listed in the handouts as a side effect, nothing was ever discussed as to preventatives. I will admit I was a bit shell-shocked and probably didn’t ask the appropriate questions. Anyway, I did end up with neuropathy, predominantly legs and feet. Was told it should go away in 10-12 weeks post chemo. So even though mentioned at every visit after, it was finally after 5 months when I finally said “so at this point I guess this is permanent?” The recommendation at that point was alpha lipoic acid, 600mg twice daily. It actually worked over the course of 6 months. I still have a touch on the bottom of the left foot but that’s it.

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