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DiscussionAortic Root Aneurysm treatment/ advice
Aortic Aneurysms | Last Active: 21 hours ago | Replies (15)Comment receiving replies
Replies to "I will .. hopefully we will know more after the genetic testing comes back"
Im so sorry your husband and you are going through all of this. The uncertainty, the anxiety can be so brutal. From the minute you find out you have an aneurysm in your aorta, you don't ever think about your heart without considering it again. 🙁 There are a fair number of people out there walking around with them that don't know it because they haven't had any symptomatic medical condition that was being investigated that warranted scans and discovery of them. In their cases ignorance is bliss I suppose! But even if you all don't have all the answers in this very moment, you do have some information, working on a plan to address and fix the issue, putting together the team of doctors who will help you fix the issue, etc. so that's a good thing! Hopefully you both can find some peace of mind in that to help you during this waiting period. I'd say if your doctors are at mayo, you are in pretty good hands as they are one of the top centers but if it helps your husband and you mentally nothing is wrong with having another top center at least looking at your husband's case for a second opinion if you haven't done so already. You can send his records over to Cleveland Clinic to have a consultation by tele/video with that team of doctors there, or perhaps consult directly with a Cardiothoracic Surgeon vs. Cardiologist at your own center if you haven't done so already. If so forgive me, I don't know all the details of your journey thus far. Sometimes I think just feeling like you are doing something active in addressing all your concerns by reviewing your team and the plan and looking at all the other alternatives is helpful with the anxiety a bit. In any case I hope everything will turn out very well for your husband and he is able to get the surgery that will correct the issue for him soon. Wishing you both good health!