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PNETs: What comes first? Surgery or try to shrink tumor with chemo?
Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (20)Comment receiving replies
I’m sorry you’re going through this but glad you’ll be seeing a net specialist. Many net surgeons will operate when general oncology surgeons won’t. Has there been a gallium or copper scan done yet? That is net specific and will tell you if there are other unseen mets. If not, I would definitely seek a second surgical consult with a net surgeon.
Replies to "I’m sorry you’re going through this but glad you’ll be seeing a net specialist. Many net..."
I found it interesting tbe oncologist is ordering capecitabine for after the gallium scan. Or it might be ready now. But we hadn't seen the net specialist yet. I have noticed some people take CAPTEM.
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Yes. My husband has the gallium scan coming up soon that the oncologist has set up then we will see the oncologist again after words. Meanwhile we have the net specialist appt before the gallium test. I hope that wont make a difference too much and he can still give us a good opinion. My husband is nervous about that test because it will be more detailed. The oncologist and the net specialist can see all the results, the records are connected now through the system. I was told they know each other.
Just hoping for the best outome and with mimimal side effects as to what they want to do.
Thank you for the suggestion!