Hi all, I had Whipple February 2024 with clear margins, 12 rounds of Folfirinox April to September 2024, but scan October 2nd showed metastases to 2 spots, liver lesions and subcutaneous tumor in my belly. Started Gemcitabene/Abraxane November 1st and I seem to be responding well to it, however had a break in treatment due to possible infection in bile duct, all cleared up now. The lesions and tumor grew during periods of non-treatment, although each infusion does to bring my CA19-9 down. The tumor board at Princess Margaret hospital (center of excellence where I had my surgery and Folfirinox) are recommending SBRT since I have only the two metastatic areas, they have the MRI-guided capability. I have three questions: has anyone had SBRT and how did it go? If so did anyone continue to have Gemcitabene/Abraxane alongside the SBRT? Last question, my oncologist said that if the SBRT successfully destroys the lesion/tumor, I wouldn't be eligible for an RMC-6236 clinical trial because they need to have tumors to assess the trial efficacy - anyone involved with SBRT experience this?
I am meeting with the radiation oncologist on Monday.
Love to hear all your comments I find them so helpful.