Neuropathy

Posted by judyeccles @judyeccles, Nov 20, 2024

Hi I’m Judy Eccles,
I’m grateful to find this forum. I am 66 and 3 years ago moved from California as a healthy and active woman. We move to Murrells Inlet, SC and I was struck horribly with neuropathy, experiencing a stabbing pains in my feet, holding them and crying out to God to make it stop. I went to the ER at MUSC and I had a CAT SCAN and they found a fractured disc at my L2, then did a vascular work up on me and that was fine. They said just bed rest for the fractured L2. I have been pushed back and forth from neurologists to Rheumatologist with different diagnosis, poly neuropathy , PMR TO IDIOPATHIC NEUROPATHY. They did a biopsy on my nerves and it showed my short nerves were affected along with my long nerves that the EMG showed. They put me on gabapentin and now on 2700 mgs. I feel it doesn’t do much good. They tried me on Cymbalta and I couldn’t take it, I scratched myself severely, I still have the scars. Now they say it’s RA and wanted me to take shots in my stomach and I refused. I was also on Naltraxon that gave me severe headaches. I just need help. I was also on steroids and weaned off. I JUST NEED HELP!!! I can walk a bit, but mostly in a wheelchair if I need to walk a distance. I would appreciate any comments.
Thank you,
Judy Sweeney

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hookedongolf2004 | @hookedongolf2004 | 6 days ago

Try getting some Barefoot shoes on the internet. They run small, so 1 size bigger, but they make my feet feel so much better during the day. The more I sit, the more I hurt, the more I try and sleep, the more I hurt. I just keep moving, whether it is to exercise or walk around the house. My pain is from sensory nerve damage, and explained to me by my arrogant Doctor who says he knows everything, that it is just neuropathy and just deal with it. It is considered idiopathic polyneuropathy and I know the severity is due to a fall I had wherein I could not get into the hospital to get tested early enough nor could get to a Doctor qualified to figure it out in time. I am 80, and I am going to give it all I can as long as I can. I have changed my diet to eat better and only take vitamins and Tylenol since I am on a blood thinner. Tens machines are our friend and can make us feel better but just a nice relaxing thing to do. You have a lot of friends in this with you. Use all the resources you can go to AI (Artificial Intelligence) on the computer, and get some good ideas. Best to you! I get it.