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Spinal cord stimulator support
Chronic Pain | Last Active: Jan 28 5:35am | Replies (57)Comment receiving replies
@greg72 it does seem like there’s a lot of leads moving makes you wonder why they can’t put a little slack in them. I had the permanent stimulator put in the 14th I had them readjust it Tuesday then again today she said this is the last adjustment until Wednesday when I see the doctor . My leads moved and I’m not active I bent over to pick a magazine up after being miserable for a 1-1/2 it was so nice being 95% pain free I forgot about bending it was even helping my neck which it shouldn’t they said. I’m praying they can move the wires . I’m not sure how insurance works since I bent hopefully it covers it. I have the Boston-Scientific I don’t feel it which concerned me not knowing if it’s working other than the pains gone. Not knowing if it’s turned too high the first day they removed the trial both of my calves cramped for 2 weeks, and then when my wires came loose on the permanent one calve cramped badly. Have you noticed that with yours ?
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Yes I've noticed when the leads moved it feels different. The first one SCS when the leads moved it felt like a 500 lb man was sitting in my chest and I couldn't breathe. It hit nerves that squeezed my chest and had to be shut off immediately. This time I kept feeling the vibration but no serious pain just annoying. Laying in bed and suddenly vibrating when I'm trying to sleep. I would feel it all different times so it wasn't just positional.
Now the Dr who installed my 2nd one will not fix the issues just remove it period. His partner said he would remove entire device and install a new one. It seems they don't just move the leads. Maybe for me it's because of where they were placed on in thoracic and one in lumbar. The entire purpose of the SCS is to get relief and let us get back to living a somewhat normal life. If we can't bend over, twist or literally have to watch every single move we make how is that a normal life. Even with my SCS I'm still in pain meds to have a more comfortable daily life, without them I would be in bed or on the couch every day. Hopefully your Dr can come up with a plan of attack to adjust your leads and not remove and replace.