Connect
← Return to MAC - To treat or not
Discussion
Comment receiving replies
Let's start with roughly where you live so we can make suggestions.
If you are able to travel, National Jewish Health (NJH) in Denver and Mayo Clinics in Rochester, MN, Florida and Phoenix, AZ are good places to start. In addition, there are many excellent treatment centers around the country including University of Texas, Tyler, NYU Langone, Cleveland Clinic, and several I cannot think of right now.
Replies to "Let's start with roughly where you live so we can make suggestions. If you are able..."
I live in Fort Myers, Florida. I still drive. More and more I am being convinced that I need to reach out beyond my pulmonologist. I don't see where Bronchiectasis and NTM or MAC seem to be on his interest list. And Infectious disease doctors here in Fort Myers want my pulmonologist to refer me. Won't see me without a referral even as a consult.
Connect
Does anyone have experience with the Mayo clinic in Phoenix? Considering a move to that area and curious about their level of expertise with NTM. Unfortunately proximity to good care has gotten to be a major consideration for some of us. Thanks