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Lynch Syndrome & Colon Cancer

Colorectal Cancer | Last Active: Feb 3 10:26am | Replies (27)

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@bellsina71

Also I just wanted to let you no, that when I had: cancer when I was 38 they did a complete proctocollectomy that is removal of my entire large intestine and my rectum and they also did a hysterectomy at that time because of the Lynch syndrome. They told me I'd have cancer in my uterus by the time I was 50 if I didn't do that. I didn't have to have chemo that time either. I literally dodged a bullet. They told me that if I would have waited 6 more months the outcome would not have been the same. When they did the biopsy on my colon. I had cancer all over. Places they didn't see on the colonoscopy. Because there are so many folds in your: you can't visually see everywhere. So someone that's really high risk like I was. They just wanted to remove everything and I'm so grateful they did because there was a couple places that it was almost through the: wall and they didn't see those places.. My mom already had lost my brother at that time at 32 from: cancer and I can't imagine if I would have also died at that young age because I was 18 months younger than he was.

Anyway, I just wanted to clarify that because I had small bowel cancer the last couple years twice. But prior to that I did a: cancer but I had my entire: removed not just some inches or feet. It was the whole thing.

Like I said in my other message, you can ask me anything, I'll do my best to answer. I hope everything's going good for you!

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Replies to "Also I just wanted to let you no, that when I had: cancer when I was..."

Thank you, most people are suggesting that I have a Genetic Oncologist. I live on a small island, and have access to Charleston and Savannah. So will see if a facility has that kind of specialist on staff. See my oncologist that handled by breast cancer in 2022 tomorrow. To discuss treatment plans..,...thinking of just doing a wait and see. Having a colonoscopy in a few week, to check for polyps. Finally healed by having Diareha occasionally. Thank you for sharing your story....sending a huge hug.