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MAC - To treat or not

MAC & Bronchiectasis | Last Active: 2 hours ago | Replies (15)

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@carolinediehl

You bring up some good questions. No, we don't know if I have NTM or MAC because no one has done a bronchoscopy even though the doctors in the hospital suggested it. And apparently the assumption on discharge from the hospital was that since clinically I felt better, had no fever, wasn't coughing, completed the 14-day treatment with antibiotic and only got SOB with real exertion beyond my normal activity I was cured. I told my pulmonary doctor that since doing all that I came home, felt great at first and now need to use oxygen more than I ever did and at a higher level! But where do you even start to find someone with the skill and knowledge to treat those things?

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Replies to "You bring up some good questions. No, we don't know if I have NTM or MAC..."

Let's start with roughly where you live so we can make suggestions.

If you are able to travel, National Jewish Health (NJH) in Denver and Mayo Clinics in Rochester, MN, Florida and Phoenix, AZ are good places to start. In addition, there are many excellent treatment centers around the country including University of Texas, Tyler, NYU Langone, Cleveland Clinic, and several I cannot think of right now.