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MAC - To treat or not

MAC & Bronchiectasis | Last Active: Feb 2 2:17pm | Replies (34)

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@carolinediehl

His advice was to continue my medications I have been on for years, resume using my vest and nebulizer twice a day with albuterol and 7% saline, and to see him again in 3 months after I get a repeat CT scan along with a pulmonary function test. I have been through Pulmonary Rehab twice already. The only time I bring up sputum is once I am already sick. Vest and nebulizer do nothing. How do I go about finding a doctor who regularly treats MAC and Bronchiectasis? I don't think mine does. The practice web site listed his interests in such things as: Lung cancer, Advanced bronchoscopy, Robotic bronchoscopy, Endobronchial ultrasound, COPD, Asthma, Interstitial lung disease, Obstructive sleep apnea, and Critical care.

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Replies to "His advice was to continue my medications I have been on for years, resume using my..."

Do they have you on azithromycin, ethanbuterol, rifabutin? It's called The Big Three, some people can only take two of them. However, depending on what medications you're on. You should be on at least two of those if not all three to treat the Mac. For treatment of Mac you should be seeing a doctor who deals in infectious diseases/ID Doctor. MAC is not common. There could be many reasons why you may have gotten it. They have never figured out why I did. And I know many others that are in the scene predicament is me. However, you want to have someone treating you that knows how to treat this and is constantly getting updates on new treatments and therapies for it. Get a hold of someone in your network that's an infectious disease doctor and make an appointment. Most infectious disease doctors are going to treat MAC or if they have a clinic they will have doctors there that do treat it. I would not trust my treatment to my primary physician for it.