Hi! I also have Mac. I was diagnosed a couple years ago and mine was moving so quickly that they were extremely concerned. I went from a couple nodules to nodules everywhere moving into the other lung.

My doctor put me on the daily dose of ethambutol and daily azithromycin. Within 6 months my Mac was completely gone. I was not on all three medications like many people are and some people can't tolerate that. I tolerated it very well but I couldn't be on the third medication because of a different medication so I was forced to normally taking two. I also started taking a relatively new drug Arikayce and it's a nebulizer that you inhale everyday for about 15 minutes. It's an antibiotic. That really helps finish healing anything that wasn't healed. I only stayed on that for a few months though. My case is maybe not that normal just because things cleared up so quick for me and I was going through cancer at the same time. I stopped my antibiotics about a year ago and have regular CT scans on my lungs. I have not had any more reoccurrence or the mac getting worse, it has stayed the same for quite a while now... Of course the hole in my lung is still there but nothing has really changed with it and that's what they want to see.

I would definitely do any treatment. They asked because you don't want the Mac to get worse. The problem with this is that it puts holes in your lungs that are permanent. Or if you have any questions I'll do my best to answer them!

Angela