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Traveling with PMR

Polymyalgia Rheumatica (PMR) | Last Active: 2 hours ago | Replies (29)

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@JustinMcClanahan

Hello @aisp3b,

I combined your discussion with an existing discussion of the same title:

"Traveling with PMR"
- https://connect.mayoclinic.org/discussion/traveling-with-pmr/

Here you will meet members @dadcue, @kmb181, @johnbishop and @kmeikle1 who may be able to share their more recent travel experiences with you.

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Replies to "Hello @aisp3b, I combined your discussion with an existing discussion of the same title: "Traveling with..."

I've had PMR for a little over a year, and am currently on a 6 week warmth seeking trip to the south to visit family and also see if the warmth helped the PMR. I won't likely try something like this again even though the warmth has been beneficial. I had tapered down to 20 mg of pred before the trip but had to go all the way back to 20 (on rheumy advice) due to a concern about GCA and that is very disheartening. I did what I could to make the trip manageable, including purchase of a Lab Cushion seat for the long plane ride and a Rx for a low dose anti-anxiety med some travel is always stressful. Both of these things helped but not enough. I found finding medical help difficult while on the road and I had to spend several days in recovery mode on several days for various reasons.
That being said - this is only my experience and I'm weighing my own costs / benefits. I love my home and friends and the setback wasn't worth it. But I'm a little high strung anyway so the trip set me up for trouble. And I haven't been dealing with PMR for years and years, so I wish I'd just been more patient.
I hope this is helpful.