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Adhesive Arachnoiditis & the Effects on Walking

Spine Health | Last Active: 9 hours ago | Replies (75)

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@charlesjr1969

I have had Adhesive Arachnoiditis for over 10 years now. I had my back fused L4-S1 and during the surgery I suffered a 5cm tear of the dura and a huge leak. About 2 months later the pain in my left buttock and left foot went from some pain to pain so bad I have to lay down. A neurosurgeon had me get a MRI which the Radiologist noted severe clumping of the nerve roots at L5-L5. 6 months later he removed the hardware and did exploratory surgery and noted the nerves were severely clumped. Things stayed the same for a few years and then I could no longer feel my left buttock and inner thigh. I also suffered from ringing in my ears that comes when I am hurting really bad. I also can’t tell I have to piss if I am laying down but as soon as I stand up I have to go immediately and in the last year am starting to wet myself. Bowel movements are also a problem because the nerve damage has affected my sphincter muscles. I trip over things all the time because I have lost the ability to know how high I lift my foot and the falls seem to have made the Arachnoiditis worse. I am 55 and it destroyed my life. I can see myself in a wheelchair sooner or later.

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Replies to "I have had Adhesive Arachnoiditis for over 10 years now. I had my back fused L4-S1..."

Charles. I can relate to everything you have said. I am in the last ( in my opinion ) of AA. Called catastrophic. I'm on a walker. I have taught myself to cath and I understand your bowel issues also. Many messes. If you would like to talk you can email me at henryis7yearsold@gmail.com. my name is Sherry. I've had this so long that it took 8 + years to find it. Which was just this past fall even though my Dr knew in April but didn't inform me.
Please reach out bc it helps to talk about what is happening, there is so many but no one specializes in this that I know of except by breading Dr Tenants books. They are informative.