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Started Repatha - Side Effects

Heart & Blood Health | Last Active: 10 hours ago | Replies (130)

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@con123

I am going now to pick up my Repatha - $500.00 for one month because of the Tier class of the drug making me meet a deductible ( medicare Part D with Humana) - I talked to my pharmacist who said many of his clients tolerate this well, much better than statins. Next month, and onward, will be $125.00. Most of my prescriptions are 10.00 or less so this is sticker shock. I also have a sinus infection and have been really achy and I'm not on anything for cholesterol, so I will not start this drug until I am fully well. If I were on it, I would blame it for my lingering month of sinus issues. I appreciate this forum and people in the trenches talking, not doctors and pharmacists. Still, it is hard to tease out what causes what, especially as we age. I can attest to 4 months of bliss with pain and weakness remitting when I stopped atorvastatin. I only gave Zetia a week because I got aches again, but was it the sinus infection? I don't know.

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Replies to "I am going now to pick up my Repatha - $500.00 for one month because of..."

No one can tell you the answer. My experience was that every statin, every dose caused intolerable pain. So, if you had pain on one you probably had pain on the other. And, sadly, will probably have pain on Repatha. The pain takes longer to show up on Repatha, for me, about 2 months. I thought I had finally found one I could take, but, when the pain came, it can hard. Just my experience. I wish you well. Unfortunately, doctors just want you to take it no matter what pain you are in. A lot of people take statins without a problem which makes it hard on those that have bad side effects. The doctors tend not to believe us, which is ridiculous. I’m not a whiny toddler, I am a 77 year old smart woman that wishes she could take them, it would be so easy if I could. Instead I have spent a decade having terrible life disrupting side effects as doctors keep trying different brands and different doses after which I spend months each time nursing myself back to health. I finally said “I quit” to which my doctor said “then I can’t help you.” A stunning statement to hear from your heart doctor. Actually, if he really cared, he would work with me on other things that might help and, at least, be sympathetic. On my own I got a base line Lipid Panel and started taking Beta-Sitosterol PlantSterols which are supposed to to lower my LP(a). So far no side effects. I will do another Lipid Panel in 6 months. I have to do something.