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What are you doing to keep AML from relapse after transplant?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jan 26 9:25pm | Replies (12)Comment receiving replies
Thank you for your response. What an inspiration you are having 9 years post transplant and still going. I didn’t know that was even possible. Does the fear of relapse ever go away? I have been doing therapy with a hypnotist to stay positive and it has helped me make good mental and physical chemistry. Probably 6 months now off Tacrolimus. 2 years check in April.
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It gets better with every year! I think it’s important to try to get your mind off AML.
During my first two years I immersed myself reading articles about AML, transplant and different clinical trials. I also searched for stories on line of transplant patients. Some of them were encouraging and others were not.
My faith in God played a huge part in how I viewed life and the uncertainties I was facing. I found that praying and telling God about my fears gave me peace. I had no control over what new health challenges were ahead of me, but God is in control and I trusted him.
I realized that I needed to focus on something more positive. I started exercising and looking for a job to get back into my line of work. After over 100 applications I was hired by a university on the West Coast. So, I moved there from Michigan. I have been able to rebuild my life, one step at a time.
Both my body and my life look very different from before my diagnosis, but I am content with it.
I recommend that you focus on something you are passionate about or develop new interests. You will find that a lot more fulfilling than letting your life be ruled by fear.
I don’t know what tomorrow will bring, but I am making the most of it today!