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What are you doing to keep AML from relapse after transplant?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jan 26 9:25pm | Replies (12)
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@g4c

I can’t tell you how important it is to hear from survivors because looking at the statistics is just so scary. My induction was successful and the transplant has engrafted. Had a bout of skin GVHD but no more. Coming up on my 2 year post transplant check. Blood counts continue to improve. Workout hiking or with weights 6 days a week, no sugar, meat, dairy. Not on any meds for months now.

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Lori, Volunteer Mentor | @loribmt | Jan 24 4:30pm

Well, you came to the right place to get first hand accounting from fellow transplant friends. It can be incredibly beneficial to be able to speak with people who have a walked that walk! I didn’t have a mentor or anyone whom I could talk with who had AML, let alone a bone marrow transplant. Trying to find info out on the internet filled me with terror! So, that’s why I’m here, along with other members to help guide anyone else walking along this path with honest, straight answers.

Try not to get caught up in statistics…if I relied on those for my survival, I wouldn’t be alive today! LOL. The odds weren’t in my favor with AML. But the transplant changed all of that!
And if it’s any consolation for you coming up on 2 years…here’s one statistic you can relish! I was told by my transplant team at Mayo and also my hematologist locally, that statistically, if a BMT patient makes it past 22 months without a relapse the chance of that happening drop appreciably. So, you are now at the 24 month point and it should be smooth sailing forward!

Are you on a vegan diet? What are you doing for protein?

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