← Return to Recently Diagnosed with Stage IV Adenocarcinoma

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@gamaryanne

Please read my response to Annette who posted something similar to you.

Get a SECOND opinion!! I was diagnosed Stage IV 11/2021. I have been through two types of chemo, 3 surgeries, and now on a clinical trial. There are options.

Pancan.org can give you a list of NCI Pancreas designated institutions around the country. These are places you must visit - at least 2! I visited 3 to make my decisions. When I was diagnosed I had MULTIPLE tumors in my liver, in different lobes. Don't give up!!!

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Replies to "Please read my response to Annette who posted something similar to you. Get a SECOND opinion!!..."

Thank you. I looked at your response and appreciate your comments. I am starting with Chemo on Monday and I am encouraged by your comments. I will be meeting with my Oncologist at Mayo on Tuesday; hopefully, she will have some additional guidance for me. I have a relative who is on the board of the Lustgarten Foundation and will follow up with them as well.
I am not going to give up and I appreciate your encouragement not to do so. I have had so many emotions the last two weeks since my diagnosis. It helps to hear about someone who is successfully managing their cancer. Sending you prayers for continued success and health.

Can you share which centers you visited and where you ultimately received treatment from? My mother was recently diagnosed with stage 4 pancreatic cancer and we are going to UCSD but we feel everything is moving at a snails pace, which is terrifying as we feel the tumor is just growing. She has liver mets and likely lung as well (nodules not biopsied).

We want to get second opinions elsewhere but also worry it will delay start of treatment.

Thank you for sharing your experience

Where are you being treated? I am currently at Mayo in Rochester. My oncologist is "driving the bus" so to speak but I am doing the chemo locally. I finished my first round of chemo last week and it went well. I had some side effects, mainly nausea and some diarrhea, but they were very minimal. I am also interested in the types of surgeries you have had. Thank you so much for the encouragement and insight.