Connect
← Return to TITAN:SvS Study - Ascending Aortic Aneurysm
Discussion
TITAN:SvS Study - Ascending Aortic Aneurysm
Aortic Aneurysms | Last Active: 3 days ago | Replies (14)Comment receiving replies
This would be reason enough for me to avoid Mass General and I'd be writing scorching letters to the hospital administration and anyone else I could alert to this situation. Find a better hospital, a better surgeon, and ask lots of questions beforehand. It's terrible what happened to you and I'm very sorry. I worry a lot about the newfangled trend of setting specific protocols for things, despite what the patient might require or the doctor recommend. The recent brou-ha-ha about limiting the amount of anesthesia for operations is a case in point. That may have been overblown, but that notion is blowing in the wind.
Replies to "This would be reason enough for me to avoid Mass General and I'd be writing scorching..."
Connect
Oh, I've tried to get Patient and Family Relations to help twice now. I even copied in the Chief Medical Officer. They never mentioned their internal ethics board, but I found it accidentally online. So I filed a complaint, specifically against their lazy rheumatologists because I had documented evidence of how egregiously bad they were. We'll see.
But I'm still going ahead with the ARISE II study, if I get accepted. I'm tired of having this hanging over my head and I am now more well aware that the cardiovascular specialist I've been seeing is not who I should be seeing. It's clear Mass General Brigham isn't taking me seriously.