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No symptoms or health problems

MAC & Bronchiectasis | Last Active: 4 days ago | Replies (48)

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@jill6063

Hi Sue -
Am I correct that you neb once per week? I’m on 2x per week with no symptoms, and assumed I may have to do this forever. Is there such a thing as “graduating” to fewer at some point (assuming I never develop symptoms)? If so, I would be ecstatic to think of that possibility! I’m heading to National Jewish in April, so am eager to learn more.

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Replies to "Hi Sue - Am I correct that you neb once per week? I’m on 2x per..."

Let's begin with - everyone is different, so your advice may vary. And many other here would be more conservative, and probably their doctors as well, but pulmonologist is very tuned in to each patient and tailors their plans accordingly.

This is a practice worked out over 2 years with my pulmonologist - I gradually reduced my nebs but used asthma meds daily, was still able to do daily airway clearance, stayed symptom-free and my CT scans are stable with no evidence of infection, only bronchiectasis and scarring from previous infections.

The caveat is - the minute I get respiratory symptoms (such as when I got Covid in September) I jump right back to twice daily nebs and airway clearance, adding a budesonide neb if I don't improve within 48 hours.

Do you also have a local pulmonologist you might consult about cutting back gradually based on the overall severity of your situation?

Hi Jill - Glad to hear you were able to secure an appointment at National Jewish. A couple of us have stayed in the Cherry Creek area which is approximately ten minutes away from NJH.
I enjoyed my stay at the Marriot Residence Inn, (they give a discount for those going to NJH) if you are considering looking for that type of accommodations. Whole Foods Market is practically around the corner and Sprouts is down the street from the Marriot. Good restaurant in the area.
Barbara