Pain only on right side of body

Posted by athenamom @athenamom, Jan 22, 2024

Hello! This is uncomfortable for me to do, I’m not usually a forum user.

I have been dealing with chronic pain for around fifteen years, and the pain was originally focused on the right side of my neck. After a few years it spread to the right side of my face and my right wrist/fingers, and has now reached my right lower back, thigh, calf and occasionally the top of my right foot.

I have always wondered about autoimmune disorders (5 out of 7 of my maternal aunts/uncles have an autoimmune disorder), but I tested negative for ANA. I did have shingles on the right side of my face around 20 years ago, had multiple cysts, fibroids and endometriosis resulting in needing a hysterectomy, and very common unexplained rashes.

Thank you for your understanding and time, it is not an easy process to have so much pain with very little understanding or guidance.

Take care!

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@leigh123

Ask away, happy to answer any questions.. through my journey I’ve found doing my own research and speaking with others more helpful than any of the drs.

I’ve been put through the rings, I’ve seen multiple neurosurgeons, neurologists and been doing hydro, physio, mirror box therapy and graded imaginary 2-3 times a week for the last 2 years, they even made me complete a 6week pain course which was a complete waste of time, I don’t get how they expect being mindful to relieve this awful pain, I held back but so wanted to tell them where to shove it!

I got discharged from hospital last week after being on ketamine for 8 days, only to have had my meds cut back, be back on opioids and to be told that there is nothing else my pain specialist can do, so now I have to start from scratch with a different pain specialist that is a retired neurosurgeon.
Fingers crossed this new Dr is able to help me

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hello, i was reading your post i was wandering if the pain is the same as mine not 100%, i have pain on the right lower side of the abdomen and in between hip and thigh , ty so much

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@leigh123

Hi I am dealing with a very similar issue..
I had a work injury almost 2 years ago, pain started in my right shoulder and right arm, ultrasound showed bursitis I had 2 cortisone injections and underwent physio twice weekly for 6 months with no improvement, dr then ordered mri of shoulder and brachial plexis all results were normal. Next step was cervical mri that showed clear disc bulge, degenerative disease and spinal cord compression at c5/6 and c6/7, I had a c7 nerve root epidural which only caused the pain to worsen and spread to the right side of my neck. 12 months after original injury I underwent adfc at c6/7, waking up in icu I had the right side of face burning and tingling fast forward 6 weeks I was complaining about worsening pain to the neurosurgeon, he sent me for an EMG and nerve conduction tests which all came back normal. 3 month's after surgery I still suffer all the same pains only more severe I was diagnosed with upper quadrant CRPS 6 months post surgery. Fast forward another 6 months I now have the same burning throbbing pain down my thoracic back, right leg and into my foot. Last week I was admitted to hospital for a 7 day ketamine infusion, they suspect it may be autoimmune and did a lumbar punch to check for ms and redid EMG and nerve studies only to find permanent nerve damage at c7, im still awaiting lumbar punch results and the ketamine did nothing for the pain.
I have this week been diagnosed with right sided spinal CRPS so at present the pain specialist and neurologist are discussing either a spinal stimulator or nerve ablation as the next step

Keep advocating for yourself, and I really hope you get relief and find answers real soon xx

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Hello,
I also had an ACDF for C5-6 and 6-7 and since then, I am being pinched in my neck, like something is stuck. Over the last 4 years, since surgery, I've been losing strength in my right arm and it aches so bad. In the last year, my chest feels like it's glued together and now my leg is starting to give way. Imaging all shows that it's "fine" but my neck clunks and sounds funny and no one can figure out what is actually wrong. The worst part is doctors don't seem to care. They give up because they can't find it on imaging. I don't know what else to do anymore. Any other suggestions or ideas you might have would be great.
Thanks

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@coachgail29

Hello,
I also had an ACDF for C5-6 and 6-7 and since then, I am being pinched in my neck, like something is stuck. Over the last 4 years, since surgery, I've been losing strength in my right arm and it aches so bad. In the last year, my chest feels like it's glued together and now my leg is starting to give way. Imaging all shows that it's "fine" but my neck clunks and sounds funny and no one can figure out what is actually wrong. The worst part is doctors don't seem to care. They give up because they can't find it on imaging. I don't know what else to do anymore. Any other suggestions or ideas you might have would be great.
Thanks

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I haven’t got any advice unfortunately I’m at a crossroads myself.
I’ve since had several nerve blocks in both lumbar and cervical, only thing they done was make pain flair for a week or so after each
8months ago I had a week long trial of a dual spinal cord stimulator, both cervical and lumbar, was the worse week of my life, I could feel the buzzing on the no feel setting and even after it was removed for a few weeks

I recently had a leg vascular ultrasound to check for circulation issues, all came back clear, my entire right side still suffers with burning aching pressure and colour and temperature changes

All my treating drs agree on right sided ipsilateral CRPS Diagnosis.

I’ve had the workers compensation Dr stating that lower limb symptoms could be due to an underlying undiagnosed condition such as osteoarthritis, but all my X-rays are clear of this

At present my pain specialist is just trying out new medications to help control the pain, I found norspan pain patches to be the biggest relief but unfortunately had an allergic reaction and broke out in hives, we’ve also tried methadone for pain which only lasted 3 days as I could not stop vomiting, so at present I am back on opioids and not knowing what next steps are

Sorry your not having much luck, wish I could help more

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