← Return to PNETs: What comes first? Surgery or try to shrink tumor with chemo?

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@vanhauen

Take a deep breath. There are lots of treatments for this cancer. I also have a Grade 3 with a Ki67 of 38%. I did the CAPTEM oral chemotherapy combination. I had very few side effects except the dose was lowered because of low platelets. I had shrinkage after 3 months and then no change after 3 more months. So then they will give you a break and stop the chemo. I have now been off the chemo for 6 months with cancer stable. I do do Octrotide shots as I have functional Small bowel net with stage 4 Mets to bone and liver. I have felt fine throughout and continue with normal activity. Your husband will do great!

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Replies to "Take a deep breath. There are lots of treatments for this cancer. I also have a..."

Thank you, always like positive feedback. It is great you are doing well. The oncologist said since my husband has small nets along with probably a 3inch pnet on the liver and about a 3inch size on the pancreas they wouldn't recommend surgery since there are also small ones located on the liver.
We will see what the specialist has to say.