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DiscussionLooking ahead after Tymlos: Reclast, Evenity or HRT?
Osteoporosis & Bone Health | Last Active: Jan 24 9:23am | Replies (58)Comment receiving replies
Replies to "Hi @windyshores. I recently finished almost 17 months of Tymlos. Unfortunately, I just found out I..."
@8fish I wish I had known I could have a DEXA before 2 years. Noone told me that and I just found out!
I attended a master class with Lani Simpson before going on Tymlos and a woman in the presentation had done Tymlos then Evenity with gains from each. Some posters here have done that. My doctor said there was "no data" on this and both my doctor and another endo told me that I was the only one in their practice doing Evenity after Tymlos and was my "own protocol." My doctor wrote "thank you for your persistence" which I thought was humorous.
At 18 months my bone markers showed that Tymlos probably wasn't doing anything. I spoke to my endo, another endo (mine was away) and McCormick and all said to finish the two years but all agreed it might not be doing much. So stopping at 17 months might be okay. Congrats on your gains! (Cortical is tough to address!)
I am concerned that your doctor said you could lose all your gains if you do Evenity. Argh! Hope that isn't true! Evenity is so new that there is no research finished as yet to support going either way.
I am having a DEXA tonight. I did two years Tymlos at 7/8 dose. 4 months Evenity, half the time with one shot not two, and two 1mg (low dose) Reclasts in June and September. My CTX is 145 though my doctor does not rely on bone markers.
I feel like I have been flying a plane in the dark with no instrument panel! I see my doctor in early March and hope to discuss doing anabolics again, but I am sure there is "no data" on that either. A big question for our doctors: what is the long term plan? All these meds have time limits (Prolia is up to 10 years now but my doc doesn't use it). So if we have 20 years left, what's the plan?