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DiscussionLooking ahead after Tymlos: Reclast, Evenity or HRT?
Osteoporosis & Bone Health | Last Active: Jan 24 9:23am | Replies (58)Comment receiving replies
Replies to "@drsuefowler yes that 20% gain in spine was at the 18 month mark with Tymlos. I..."
Good luck @windysgores! Let us know your results.
Hope you find out that you’ve make great gains! Let us know how your DEXA turned out! @windyshores
Hi @windyshores. I recently finished almost 17 months of Tymlos. Unfortunately, I just found out I have high urine calcium (365), so I have to stop. At the one year mark I had a 14.7% increase in my spine and I am very pleased with that result. I don’t know if my hips improved or not because my left has been replaced and my right has a pin in it. (Therefore they can’t do a DEXA on either one.) They did test my right forearm and sadly it didn’t improve at all. I’ve been told that our forearms are mostly cortical bone and Tymlos doesn’t do much for that. This is very upsetting to me because I am a fine art painter and I’d hate to break my right arm or hand. Right now my forearm has a T score of -3.6 (severe osteoporosis). For this reason I wanted to do a short course (similar to what you did) of Evenity. I was hoping the Evenity would improve the cortical bone in my wrist. However, my doctor said that would be a huge mistake because I would probably lose all my gains from Tymlos. Since I had four compression fractures prior to starting Tymlos going back to square 1 is a terrifying thought! My question for you is did you lose any of your Tymlos gains while you were on Evenity? I assume not or you would have said so, but I’m asking the question because I have to be sure. Also, do you know of anyone else that followed this sequence with success? And lastly could you share the name of your doctor with me? You may want to PM that last information to me if you don’t mind providing it. I thought I had 7 more months to figure this all out, but now I have to know as soon as possible. If I don’t do the Evenity I plan to go on Fosomax. I did not chose Reclast because I have TMJD which often causes dental problems. From what I’ve read, Fosomax is much less likely to cause ONJ than Reclast. I’d appreciate any information you can give me. Thank you, @8fish