My only consistent symptom has been pain in my right lung when taking deep breaths - I was managing it with ibuprofen for about 3 months and then ultimately was able to wean myself off a few weeks ago. The pain moved around for a bit, which I was told made sense (referred pain) because the mass-like thing in my lung is right against the pleura. Now I feel barely any pain at all - just a hint of it still being there. I never had a cough or was able to produce any sputum so I ultimately had to get a needle biopsy which showed granulomitis inflammation and MAC on the long culture. I've had like 6 CT scans at this point since my first ER visit and nothing has really changed there.

I've had a bunch of other weird things in my body on and off...random abdominal pain, knee pain, vision that seems to have deteriorated kind of rapidly. I am also seeing a rheumatologist but all my abnormal tests tend to be nonspecific and thus inconclusive.

Pulm thinks I should treat because the thing in my lung is quite large and she worries about loss of lung function long-term or risk of having this infection hanging out in my body if I were to get pregnant again. She's consulted with her mentor who is an expert in MAC but I'm hoping to get one more positive confirmation before I start treatment.

I say definitely follow up on the CT scans - no reason that you shouldn't get results by the next day.