← Return to How do you cope with Mixed Connective Tissue Disease (MCTD)?

Discussion
Comment receiving replies
@vjdembro

...update....got a rheumatologist! yay! and she ordered more tests. so far the few tests I have seem to show abnormal levels but not super out of range. Tell that to my symptoms! lol. Sjogens though she thinks.
My PCP has me on LDN . In 2 more months I will see if there is any diff. otherwise, prolly back on Hydroxychloriquine per Rheumatologist.
I try to walk at least 8000 - 10,000 steps a day. Last week on one day, I did 16,000! I just wanted to accomplish SOMEthing like my old competitive self. But cratered these last 2 days. I feel so much better when I am moving, I do not want to stop. Does one have to pay for a little exertion? I am talking about just WALKing and spread throughout the day. No heavy breathing etc.

Jump to this post


Replies to "...update....got a rheumatologist! yay! and she ordered more tests. so far the few tests I have..."

Your rheumatologist sounds on the ball. You don’t have to have crazy high antibodies to have high symptoms. Mild to moderate exercise is good,BUT- don’t overdo it. I find the hardest things for people to understand is the difference between tiredness and fatigue (the car isn’t LOW on gas: there is NO gas, it’s incurable but treatable, and that it’s your immune system being Overreactive and attacking your own body for no definitively known reason. Don’t let anyone fill your ears with health nut or conspiracy theory bullshit. Best of luck. Contact me if you wish to.