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Precursor symptoms to PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jan 26 7:54am | Replies (115)

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@lenny22

I too was suffering from hip pain. Went for xrays Ortho told me I have know hip issue at least not a joint problem. He said I had Trocantic bursitis. Hip continued to cause pain when walking and playing golf. Eventually my other hip began to ache. I developed pain in my shoulders neck arms and hands so bad it woke me up at night. I had been to my Primary physician and he sent me to a Rheumatologist which I mistakenly procrastinated going to because the pain wasn't full blown. That changed fast I couldn't walk or play golf or walk my dog. Rume sent me for blood work and MRIS which took almost two hours. Was diagnosed with PMR . I was put on prednisone 20mgs and the next day I was 50 percent better. I really didn't like the pred and either did my rume. Long story but this has been going on for 6 mos. 6 weeks ago I was put on Actemra once per week. I have been reducing pred and should be done soon. I really haven't been feeling very good but have way less pain.
Lack of ambition and mild stomach issues. I'm wondering how other people feel. I'm also worried about the side effects of Actemra. Hope everyone is well.

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Replies to "I too was suffering from hip pain. Went for xrays Ortho told me I have know..."

I started on 15 mg prednisone, went up to 20 a week later. I finally saw the rheumatologist a few weeks later who put me on 40 mg, to taper by 5 mg every week. I started to feel a bit better by the end of the 35 mg, but when I got down to 30 mg my pain skyrocketed again, and mobility decreased. My CRP blood test went up to nearly 60. The rheum added weekly methotrexate Dec 23, and based on blood tests increased the prednisone back to 40 mg on Dec 30, no taper. I've been feeling better since the second week of January so on my own have decreased prednisone to 35 mg (no taper) to see what will happen. The methotrexate seems to make a big difference, but the side effects aren't great, nausea, fatigue, and now painful mouth ulcers. I haven't been offered Actemra, maybe it's not available in Canada? Anyway, hope you're feeling better on it and the side effects aren't too bad.