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Uterine leiomyosarcoma with lung metastasis: Treatment options?
Dec 2023 10cm fibroid that by March 2024 resulted in full hysterectomy and uterine leiomyosarcoma diagnosis. May x-ray clear however new Oct CT 5months shows 35 lung lesions. Some 1x2 cm. Bloodwork normal. Lung function exactly the same. I feel fine -but apparently I'm not. Is anyone familiar with leiomyosarcoma metastasizing to the lungs ? Has it been that fast? What options are available ? Is there any new research that is promising ? Why do I feel fine ? What else can I do?
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Hello Colleen...
Thanks for you're thoughtful words of encouragement. We're living each day in positivity and appreciating the good that we're blessed with. Right now, we're hopeful for good outcomes, as we have been these last 2 years. Fortunately, my Wife is feeling fine in spite of the rollercoaster we're on.
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1 ReactionI have a family member who is facing same /similar
?s for you: are you using a surveillance schedule of a CT scan every 90 days.
Have you been going to a sarcoma center for treatment? Have you been meeting regular with your oncologist.
I also have LMS. My hysterectomy had been 20 years ago. I also had lots of fibroids prior to hysterectomy. I wonder if my LMS is from a parasitic fibroid that escaped the hysterectomy. My first scan was all clear... Next one is in March.
She was diagnosed on Christmas Eve 2024 and has never left the hospital.
They gave her 3 different blood thinners and say she's still clotting and surgery is not an option.
I' m so sorry . i was replying to Western Canuck who had a hysterectomy in March 2024.
What surgery did your wife have?