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I am one year out with my diagnosis just finished 4th round of PRRT

Neuroendocrine Tumors (NETs) | Last Active: Jan 22 10:13am | Replies (24)
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@tereh

We sound very similar. Small bowel primary, mesenteric mass with resection in 2022. I have a consult for PRRT today and I'm terrified. I have non functional tumors with no symptoms. I did Octreotide for 1 year with terrible diarrhea so I stopped it. I have just a few new tiny tumors is my liver and I'm hoping I can put off PRRT for a year with scans every 6 months to watch for change.

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Replies to "We sound very similar. Small bowel primary, mesenteric mass with resection in 2022. I have a..."
nevinrbaskin | @nevinrbaskin | Jan 22 10:09am

I finished the last prrt and wasn’t as bad as anything else I’ve been through. It’s not easy, none of this … but I traveled to mnt Sinai to Dr Wolin he was wonderful in giving my a plan of attack. You may want to reach out to his office for a second opinion. I highly recommend him.

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Teresa, Volunteer Mentor | @hopeful33250 | Jan 22 10:13am

Hello @tereh,

I hope you get some information to make you more comfortable with your treatment plan. Did your oncologist give you a reason for the need for PRRT? For example, has there been growth in the liver tumors?

I look forward to hearing from you again. Will you post after your appointment and me know how you are doing?

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