EGPA is such a rare disease that VERY few doctors remember it from medical school. If your eosinophils are very high and inflammation in sinuses, lungs, joints etc are consistent with this, it should be considered. I wound up in the emergency room after trying unsuccessfully to control symptoms with bursts of prednisone, so many tests were taken at the same time, giving me a road map to take to the referrals to doctors. I was still misdiagnosed for two months until my appointment with the right Rhumatologist who had a connection with an eosinophil specialist. An eosinophil specialist would be a good start if your eosinophils are high. Mine were over 15%. Nucala has had very low side effects for me and tapering prednisone still took 9 months. As you go to lower amounts, go slowly and space the changes out. This site has great advice on tapering for this and other issues like PMR. Same process.
Ask questions and do your own research for doctors who work with this disease. Not easy but we need to raise awareness in the medical community and find ways to make the pharmaceutical industry make treatments for these orphan diseases more affordable.
Chin up and take one day at a time. Make sure you take your prednisone Early in the morning with food or yogurt to protect your stomach. No caffein helps also . I needed to take Pepsid for acid reflex due to the prednisone. As you get to 10 and lower, sleep becomes easier. Be kind to yourself and then work slow and steady to bring this beast to heel!
Good luck to all of us in this barrel together!
MTH13