← Return to How much hair should I expect to lose on Folfiri?

Discussion

How much hair should I expect to lose on Folfiri?

Colorectal Cancer | Last Active: Jan 22 6:02pm | Replies (16)

Comment receiving replies
@isadora2021

@myjiggers1 It sounds like you’re going to do my treatment, but I didn’t have radiation. My initial treatment was major debulking surgery before 6 months of fortnightly treatments of Folfiri and Avastin with the 46 hour take home bottle. The Avastin had pretty much the same side effects as the Folfiri so nothing extra to stress about IF you tolerate it and aren’t allergic to it 👍 I tolerated it well from the start. Some people can’t have it. I hope you can 🙏

Nerve pain may be your oxaliplatin. I chose Folfiri as my first line to avoid oxaliplatin if I could as neuropathy is its major side effect. I’d rather lose hair and have diarrhoea. Chat to your doctor as they can help alleviate that neuropathy pain 🌺

It took my hospital peer group review team just inside the 3 month treatment start window after surgery to make a call on what my primary was after consulting externally as well. It was difficult waiting, but in my case worth the wait ro get the right treatment plan from the start.

I had HIPEC with cytoreductive surgery and a peritonectomy after my 6 months as I qualified for it. Essentially it addresses cancer within the abdominal area. They call it the mother of all surgeries (MOAS) and I’d do it again. My body handled it well. I’ve come through remarkably unscathed other than looking like a shark has ravaged my stomach and needing to watch my fibre and hydration to avoid constipation due to adhesions in my colon resection area. I was lucky and didn’t need a temporary or permanent bag.
https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/hipec-surgery-what-you-need-to-know
I had that on 9 May 2022 and have been NED since. I get bloods and PET-CT scans and cancer blood marker tests regularly. Initially 3 monthly then 4 monthly and my oncologist told me today I can now do scans 6 monthly but bloods (the canary in the coal mine) 3 monthly 🙌

I did get some abdominal pain but with me it was the Folfiri doing its stuff. It does attack the digestive system hence the diarrhoea. I do still get phantom abdominal pain from the various surgeries I’ve had and adhesions.

I love laksa (its spice didn’t hurt my mouth) - but you just need to choose a psychological treat that you love and can handle which is high in calories and nutrition when your bottle comes off!
https://thewoksoflife.com/laksa/
Good luck! 🙏🙏🌺🌺

Jump to this post


Replies to "@myjiggers1 It sounds like you’re going to do my treatment, but I didn’t have radiation. My..."

Lets see I got diagnosed after finding I had uterine cancer from a hysterectomy we did to prevent cancer when they found pre cervical. I was so anemic they were just doing due diligence and sent for a colonoscopy and endoscopy to e see where I was losing blood. We got hit with a large bleeding mass in the right side right near the beginning. So they did surgery to remove that and took out 42 lymph nodes of which 8 were infected. And went right to folfox. I only tolerated 2 of the oxaliplatins however. I was stage 3c then. That ended in February. Started bleeding in November and found the mass in my cuff. I was soooo hoping for vaginal cuff tear or stage 1 again of the endometrial. But it came back colon. They hoped I would make it longer. Hoping for better results with folfiri!