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DiscussionAfter double mastectomy: Why do I have burning pains and more?
Breast Cancer | Last Active: 3 days ago | Replies (15)Comment receiving replies
Replies to "I'm take Letrozole daily; doctor said I'll be on it for about 4 more years. Every..."
Hi, I’m sorry to hear you are having a bad experience. The night terrors, bad dreams, and fatigue could be from the Letrozole. I’ve been in Letrozole for two years and my fatigue and bad dreams started with it. I hate that medicine. I’ve done a few 2 week holidays and the dreams and fatigue stopped. But my oncologist wants me on it for the full 5 years (3 to go). So I’ll endure it, I guess. You might talk to your oncologist about other medication options and the risks of switching.
As for the burning pain, I agree with others that it should be looked at. It could be nerve pain, they can do local injections to help with that, they can cut the nerve if it’s severe. They can also give you gabapentin for nerve pain, but it has lots of side effects too including problems with thinking, so I’d be cautious with that one. Does it hurt along the skin like with light touch? That can indicate nerve pain. Talk to your oncologist. If your surgeons are not anyone you’d go back to, talk to another surgeon for help if you need to, there are many out there that will do revisions and help people that aren’t happy with their results. Keep searching for good doctors, they do exist. Do not lose hope!
@cathybrown98 my heart goes out to you. I’m sorry that you’ve been through so much! Doctors are supposed to care for patients but we hardly come across the compassionate ones. Most often they just dismiss our complaints and treat us as nuisance. May be you need to see a counselor or psychologist who can help you deal with weird dreams or night terrors. Or you can come here to vent. We’re on the same boat dealing with this horrible illness. Here you’re not alone. Hugs.