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How much hair should I expect to lose on Folfiri?

Colorectal Cancer | Last Active: Jan 22 6:02pm | Replies (16)

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@myjiggers1

You just gave me so much hope! I am going mention those others to my drs because they are talking about adding Panitumumab because they found a KRAS G13D in my cancer testing for other cancers attached that they could possibly give alternative treatment for. I couldn’t do the folfox again because I am allergic to the Oxaliplatin. I am going to google what your added ones are for and see if they are something I can benefit from when I see my Dr Friday! I got the mouth sores… ugh not the nose! I hope they stay away! I pray for continued health for you! Do you follow a special diet? I struggle with getting water in… 🥰🤪

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Replies to "You just gave me so much hope! I am going mention those others to my drs..."

@myjiggers1 I’m so glad I could give you some treatment ideas to look into 🌺🙏 Please do let us know how you go.
https://www.cancerresearchuk.org/about-cancer/treatment/drugs/bevacizumab
Yes I also had trouble getting my hydration in because I don’t like water even with cordial added! I drank a lot of zero sugar Powerade and Gatorade energy drinks, diet ginger beer and ate lots of icey poles. My fridge and freezer were full of these things and I never got tired of them.

My diet was based around fish, chicken, veggies (such as spinach, broccoli, peas, cauliflower, potatoes) and fruits (such as tomatoes, bananas, grapes, apples, blueberries) plus yoghurt, humus etc. I found I ate mainly bananas and grapes sometimes humus and crackers while the 46 hour take home bottle was on then a huge bowl of laksa with rice noodles and prawns as soon as the bottle came off. I also liked my main meals mashed up because of the mouth sores!!

Please don’t hesitate to ask me anything. Best wishes 🙏🙏🌺🌺