← Return to Husband recently diagnosed with Cholangiocarcinoma and had no symptoms

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@astemko

Well, that is the hope but none of the oncologists would even consider it until chemo because of the lymph nodes. Which is frustrating on so many levels. I’m not frustrated with the doctors I’m frustrated with this stupid disease that showed no symptoms and now here we are at stage 3! And no clear road to surgery. But I guess it’s just a waiting game now to see if he responds. I’m sure they will want your husband to get genome and genetic testing. Ours are still pending. We only got 2 test results back as of now. This first week of chemo was ok for my husband though. No side effects. Thank God. My prayers are with you and your husband. Keep me posted. I’ll answer any questions that I can!

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Replies to "Well, that is the hope but none of the oncologists would even consider it until chemo..."

I completely understand your frustration. This disease has put a hold on our life and is keeping us from doing things we had planned like trips and such. We want to get the best care and leave everything in the hands of the doctors isnt a problem but not having even some control is so hard. Time just seems to stand still. How often is your husband getting chemo? Did they put in a port?