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Husband recently diagnosed with Cholangiocarcinoma and had no symptoms
Liver Cancer | Last Active: 9 hours ago | Replies (37)Comment receiving replies
We had our virtual call with the surgeon today. Looks like we are in the same boat as you and your husband. They want to do chemo (and probably immunotherapy) for 2 months and then do surgery. They hope the chemo will clean up his lymph nodes and (fingers crossed) shrink the tumor. So now we wait to get in to an oncologist. Right now we have an appointment scheduled for Feb 6 but the doctor is going to try and get us in sooner just because we have been waiting so long. So hopefully we will know more soon. I will probably be asking you more questions as things go on. It appears your husband is a few sessions/meetings ahead of us. Did they say he would have surgery eventually?
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Well, that is the hope but none of the oncologists would even consider it until chemo because of the lymph nodes. Which is frustrating on so many levels. I’m not frustrated with the doctors I’m frustrated with this stupid disease that showed no symptoms and now here we are at stage 3! And no clear road to surgery. But I guess it’s just a waiting game now to see if he responds. I’m sure they will want your husband to get genome and genetic testing. Ours are still pending. We only got 2 test results back as of now. This first week of chemo was ok for my husband though. No side effects. Thank God. My prayers are with you and your husband. Keep me posted. I’ll answer any questions that I can!