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GCA, zoster, and (maybe) PMR

Polymyalgia Rheumatica (PMR) | Last Active: 16 hours ago | Replies (12)

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@jlochow

Had shingles just before PMR/GCA diagnosis. Had had shingles and Shinrx vaccine apx 5 years previously. Took Valtrex after diagnosis. Got it again 1 month before PMR. Shingles lasted more than 4 weeks. Then developed PMR seemingly over night and also GCA symptoms. Was already on 20 mg prednisone for 2 years for back and bone issues. Have had many side effects. Have yet to find any other pain relief for the PMR. Opioid helped with GCA jaw pain and headaches. Going on 7 weeks with both PMR and GCA symptoms.

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Replies to "Had shingles just before PMR/GCA diagnosis. Had had shingles and Shinrx vaccine apx 5 years previously...."

Did they raise your prednisone dose when you were diagnosed with GCA? When I was diagnosed with GCA I was in the hospital for 3 days to receive IV infusions of high dose steroids. After that I was on 60 mg prednisone for 6 weeks, and I started weekly Actemra injections pretty soon after that. I can honestly say that once I started the high dose prednisone I haven't had any symptoms at all of PMR or GCA.