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Tested postive for Lynch Syndrome: Anyone have this?

Cancer | Last Active: Feb 20 9:28pm | Replies (49)
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@lindyruss

Breast cancer 4/2022...recently had emergency surgery for a blocked bowel obstruction that has tested as malignant cancer 1.9 mm tumor. Removed with 12 inches of bowel and 18 lymph nodes that were negative.
Healing
My question...recently due to the colon cancer diagnosis had the DNA testing that came back for Lynch Syndrome, something I had never heard of.
Lynch Syndrome patients, did you do chemo after your colon surgery? Oral or infusion?
If so what did you have? How soon did you have a colonoscopy?
New to this network and new to MAYO. Have requested an appointment, since my oncologist specialized in breast cancer care. Thank you for being informative and kind in this very scary time in my life.

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Replies to "Breast cancer 4/2022...recently had emergency surgery for a blocked bowel obstruction that has tested as malignant..."
Colleen Young, Connect Director | @colleenyoung | Feb 3 3:47pm

@lindyruss, hearing you have Lynch syndrome sends you on an additional path of learning. Here are some discussions and an expert blog you might find helpful as you learn more:

- Dealing with Lynch Syndrome and Constant Screenings https://connect.mayoclinic.org/discussion/dealing-with-lynch-syndrome-and-constant-screenings/

- Lynch Syndrome & Colon Cancer https://connect.mayoclinic.org/discussion/lynch-syndrome-colon-cancer/

- Expert blog: Understanding Lynch Syndrome https://connect.mayoclinic.org/blog/gastroenterology-and-gi-surgery/newsfeed-post/understanding-lynch-syndrome/

What is your current treatment plan for colong cancer?

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