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I recently had an emergency bowel surgery/tumor is malignant and 12 inches of my colon were removed.
I also tested positive for Lynch Syndrome.
It is scary, and does make you feel so alone. I had a huge pity party and was mad at my body that I have taken care of for 70 years too! Looking for the best treatment and care to handle the future living with this disease.
Please reach out to others, friends, family, church members, anyone you can talk to...it does make a difference to VENT to someone that will listen. Huge hugs.
Replies to "I recently had an emergency bowel surgery/tumor is malignant and 12 inches of my colon were..."
Also I just wanted to let you no, that when I had: cancer when I was 38 they did a complete proctocollectomy that is removal of my entire large intestine and my rectum and they also did a hysterectomy at that time because of the Lynch syndrome. They told me I'd have cancer in my uterus by the time I was 50 if I didn't do that. I didn't have to have chemo that time either. I literally dodged a bullet. They told me that if I would have waited 6 more months the outcome would not have been the same. When they did the biopsy on my colon. I had cancer all over. Places they didn't see on the colonoscopy. Because there are so many folds in your: you can't visually see everywhere. So someone that's really high risk like I was. They just wanted to remove everything and I'm so grateful they did because there was a couple places that it was almost through the: wall and they didn't see those places.. My mom already had lost my brother at that time at 32 from: cancer and I can't imagine if I would have also died at that young age because I was 18 months younger than he was.
Anyway, I just wanted to clarify that because I had small bowel cancer the last couple years twice. But prior to that I did a: cancer but I had my entire: removed not just some inches or feet. It was the whole thing.
Like I said in my other message, you can ask me anything, I'll do my best to answer. I hope everything's going good for you!
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Hello @lindyruss and welcome to Connect. I can understand the importance of having a place to vent as well as learning from the experiences of others. You are asking good questions as you approach this new diagnosis.
Here is a link with information from Mayo Clinic's website about Lynch Syndrome,
https://www.mayoclinic.org/diseases-conditions/lynch-syndrome/symptoms-causes/syc-20374714.
Have you been able to get a referral to a doctor who specializes in Lynch Syndrome? If you would like to have a consultation at Mayo Clinic, here is a link that will provide appointment information, http://mayocl.in/1mtmR63.
How are you feeling since your surgery?