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Inactive bladder with NO elasticity remaining
Kidney & Bladder | Last Active: Feb 6 2:13pm | Replies (53)Comment receiving replies
I was recently diagnosed with the same situation; similarly, an overstretched and "dead bladder" with no cure. I feel like my life has abruptly taken a severe downturn. I saved to be able to travel, but I self cath at least 10 times a day--seemingly much more than others--and I can't take that many catheters without risk of loss. And the cost for what Medicare doesn't cover is about $500 a month. This situation has also imperiled my mental health inasmuch as I was previously spoiled; a very heathy person. How do you fellow suffers deal with this? I have trouble coming to acceptance. Thanks. Tom
Replies to "I was recently diagnosed with the same situation; similarly, an overstretched and "dead bladder" with no..."
My dad is 76. Previously a completely healthy man. He had a procedure called prostatic artery embolization about a year ago. Was supposed to be a simple procedure. However, I believe there were errors made and now a year later, he has a “dead bladder” as well. He has to use nephrostomy tubes. Very uncomfortable and obviously inconvenient to not be able to live life how he had just 1 year ago. It has definitely taken a toll on his mental health as well. Anybody else dealing with this? Does anybody know of other solutions for a dead bladder? Besides the invasive surgery which he has decided against.
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I self Cath but not nearly 10 times a day....(seems like a lot) I average 5 times a day - maybe more if I have a few beers. The art of self cath is not so much an issue as ensuring you have enough wherever you go. I too struggle with that and wish there was another alternative. I know my bladder was somewhat weak going into the Urolift operation but I still do not understand why it completely fell asleep. I'm looking for some new method to try to knick it into somewhat of a gear so I don't have to rely on 100% cath. I heard acupuncture but not sure....anyone out there able to get their bladder to work after they said its "dead" .... something to stimulate the nerves?