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I was diagnosed with EPI and struggle with the limited diet choices
After being diagnosed with severe EPI I was told to follow a diet that has no meat , no fish , no dairy and nothing fried. Other members in my household eat what they want and mealtimes are depressing.
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Agree with all you have written. It has taken about a year for me to figure out what I can and cannot tolerate; it differs from person to person. While I can tolerate peanut butter (my salvation for calories so I don't lose more weight), peanuts cause my Pancreas to hurt. I am pre-diabetic, so also fighting that progressing to full blown diabetes, and following low carb. It is difficult to keep weight up while on a low carb diet. All carbs definitely are not the same and while I can tolerate 20 grams steel cut oats glucose wise, a slice of Dave's killer bread or Ezekiel, which only contain 15 grams per slice, shoots my glucose up very quickly. This is all very time consuming and requires intense study to balance, but I have CREON and it could always be worse. Ddelighted I found this group. Any other dietary suggestions would be greatly appreciated.
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1 ReactionHi, I’ve also been diagnosed with EPI and am starting my medication finally! Am not on Facebook but could do with some advice can you join Facebook privately for just this page? Thanks
Yes you can. The group is Living with EPI. You have t ask/apply to join. It is open to all who have EPI or a caretaker. It is a great, understanding group. My GI gave me no info and this helped me tremendously.
Good luck!
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1 ReactionI totally understand that. I too have diagnosed with severe EPI but given no diet options. Trying to figure it out from online info. I basically eat no dairy, no meat, no yeast. It’s been pretty difficult to stop losing weight. I hope you’re doing better at keeping weight on.
Hello. I also have EPI as well as SIBO and lactose intolerance. I also take Zenpep as well as some other digestive enzymes. Have you tried eating lean meats like 93-99% fat free ground turkey, white fish or lean chicken breasts? I do okay with these but fattier items like salmon hurt to eat and result in steatorrhea. I’ve found I can no longer tolerate high fat content foods like mayonnaise, avocados or nuts. I bake a lot of zucchini, yellow squash and spaghetti squash with salt as my seasoning and use that as my base rather than bread or pasta. It is hard to maintain your weight though due to limited calories as well as malabsorption. My registered dietitian has me on protein shakes made by OWYN.
Hope this is useful. It is lonely when you can’t easily eat out or what you prepare for others in the family. But I’m not going to lean in to the negative side and choose to thank God for the blessings in my life. I try to steer activities to things I can do like movies, book clubs, walks, board games, pedicures, etc.
Take care.