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@hmmm

Thank you for your answer. I have found out that my urologist has referred me to another urologist who is about 6 hours away from me. It is at a school. I never asked to be a test tube applicant, so i am so confused. All I know is this muscle invasive cancer has not left my bladder yet but it is basically a ticking time bomb as it is considered the most form of high-grade you can get and now I am put on a triage list. Why won't they just remove my bladder before it starts to spread? Or does it come down to money in the end? Do they get paid for every referral so this school can get patients that can help with research? The pathology report says I have, High-grade urothelial carcinoma with extensive necrosis and squamous differentiation. So yes a ticking time bomb that requires a radical cystectomy immediately before it spreads.

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Replies to "Thank you for your answer. I have found out that my urologist has referred me to..."

6 hours? Did your doctor mention a clinical trial of some sort? If it is a urologist connected to a university, your doctor may think that's a good option for your situation. That's quite a drive!

I am sorry they are dragging their feet with you. I was diagnosed on a Friday with a bladder scope and set up for surgery that following Monday. I have high grade as well but mine is non invasive and is contained to the bladder lining. The doctor I see has moved very quickly and been wonderful. I am having my second TURBT in a couple weeks to be sure they got it all. Then I will have meds injected by catheter to the bladder once a week for 6 weeks. I forgot the name of the meds. I am scared that treatment won’t work.