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Stopping Chemoimmunotherapy Treatments

Lung Cancer | Last Active: 5 days ago | Replies (13)

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@flusshund

@denise96, I'm sorry to hear you're going through this. The lung cancer journey contains many challenges, both for the patient and their caregiver(s).

I hope that you're continuing to involve medical professionals in your decisions. I know it sometimes feels like you're always having to get their attention, but it's true that the squeaky wheel gets the oil. I've even heard an Oncologist admit that as he was describing the dozens of messages from all sources he receives daily. And try every means of contact that you have: call directly, text him/her if you have their number, call their office, and send smoke signals. . . . let them know you're seeking their input.

Your husband's opioid addiction is likely interfering with his treatments, so the "average" person's experience will have little to nothing to do with his experience. You need customized, personal advice for his unique situation. I hope hospice can provide you with the consultation you seek or, at the very least, direct you to someone who can. Do you have a pain management organization available in your state? I'm going to see one here in a couple of hours.

Be sure to take good care of yourself during this difficult time. I know you're a religious person. Attending church and interacting with the congregation can provide a lot of solace and reassurance. I'll keep you both in my prayers.

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Replies to "@denise96, I'm sorry to hear you're going through this. The lung cancer journey contains many challenges,..."

Thank you so much for your comforting words. Being a caretaker is very stressful. I now have bells palsy which started yesterday. My left eye won't shut and the right side of my bottom lip is drooping. I have had it before and I recognized the signs. I went to the doctors today and she gave me prednisone. I am just waiting for them to call when they are ready. She also gave me more xanax, thank God. I only take a half of one to help me sleep. Bells palsy is caused by stress among other things. The hospice nurse did come today and explained to Joe what they will be doing. Of course, he lied about some things and I corrected him and he told me to shut up. She asked him why he had no oxycodone left. I told her that I only gave him his 4 a day according to the directions. He looked at her and said that he snuck them when I wasn't around. She said that they would be filling his pills in a pill holder and they would be monitoring them. She said you have to take them as described so we know if they are working for you, If not,we will give you something stronger. I thought to myself that was the wrong thing to say. I can just hear him tellng them that they aren't working and he needs stronger pills. When the nurse and I walked into the kitchen, I told her he was an addict. I don't want him to suffer from pain, but I don't want him abusing them either. If there comes a time when he is really in bad pain, there may be no meds that will help because he has built up such a tolerance. Well, it is in God's hands. I pray for the strength and patience I need to deal with him.