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How much hair should I expect to lose on Folfiri?

Colorectal Cancer | Last Active: Jan 22 6:02pm | Replies (16)

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@myjiggers1

Yes!!!! That’s exactly it! Thank you for putting it into words. I am so glad it worked for you! I think they are less positive on me because they said its a very aggressive strain and not acting like colon cancer. It went into my pelvic region on my vaginal cuff and lymph nodes. They weren’t tracking that because only 1% of people get it there. Its right side colon cancer to boot which is harder to overcome they say, also not the normal. I just have to be extra is all. Thats what I tell them. My Doctor cried more than I did with my visit when they were informing me that it was back and what our plan is. Folfiri was not her First choice but it was the only choice. What side was yours on may I ask?

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Replies to "Yes!!!! That’s exactly it! Thank you for putting it into words. I am so glad it..."

@myjiggers1 I am so sorry to read this and I pray that Folfiri will push you into remission 🙏

Mine was also right side. It started in my appendix and spread. Folfiri was my first line. Folfox would have been my second line if needed. You’re doing it the other way around. I then had HIPEC once the Folfiri and Avastin had done their thing. Folfiri is also going to be very rough on your digestive system with usual side effects being diarrhoea and sores in your nose and mouth. All manageable with your team 🙏🌺 I now get whole body CT-PET scans every 4 months plus a suite of blood tests 🙏🌺