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How much hair should I expect to lose on Folfiri?

Colorectal Cancer | Last Active: Jan 22 6:02pm | Replies (16)

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@isadora2021

@myjiggers1 Sending hugs 🌺

You’re not alone in your feelings. The only time I cried during my stage 4 diagnosis and treatment was the day I was washing my hair and massive clumps came out in both hands. I was so scared to look in the mirror. This is despite thinking I had it all down with getting wigs to rock and cool head gear if needed!

I worked out that what floored me in that moment was that I might no longer be able to go out in public without being identifiable as someone who was ill. I hadnt realised that had mattered so much to me. Looking “normal” had helped me pretend to be normal and get on with it.

After that initial trauma I know I would have been fine if I had to wear wigs or headgear, depending on the weather.

One of the people I worked with - a lovely lady called Nina - chose not to tell us she was going through cancer treatment. She wore such an excellent wig no one knew it wasn’t her own hair until she was recovered, had her own hair back and told us all! Another friend Tessa went the other way and had fun rocking gorgeous hair colours and styles very different from her sleek bob!

PS If you do need to get a wig do not get human hair. Too hard to upkeep and not worth the expense. Something I learned from my research 😊 Tattoos help if you lose eyebrows and/or eyelashes.

Wishing you and your son the best ❤️‍🩹 Folfiri worked for me 🙏
https://www.cancerresearchuk.org/about-cancer/treatment/drugs/folfiri

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Replies to "@myjiggers1 Sending hugs 🌺 You’re not alone in your feelings. The only time I cried during..."

Yes!!!! That’s exactly it! Thank you for putting it into words. I am so glad it worked for you! I think they are less positive on me because they said its a very aggressive strain and not acting like colon cancer. It went into my pelvic region on my vaginal cuff and lymph nodes. They weren’t tracking that because only 1% of people get it there. Its right side colon cancer to boot which is harder to overcome they say, also not the normal. I just have to be extra is all. Thats what I tell them. My Doctor cried more than I did with my visit when they were informing me that it was back and what our plan is. Folfiri was not her First choice but it was the only choice. What side was yours on may I ask?