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Gastroparesis with severe symptoms!

Digestive Health | Last Active: Feb 13 1:05pm | Replies (510)

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@zoey662

I've had it on and off since HS. I was not a diabetic till my 50's. It was years to get diagnosed as if I was feeling OK the gastric emptying study would be OK. I finally had a MD get one the next day and after 4H I still had 95% of it still in my stomach. Cisapride was a mirical from God but the FDA took it off the market for arrhythmia. Now I'm left with the constant nausea and occ vomiting. Even though I'm now a diabetic I eat whatever I can get down. I've always hated milk so all of those suppliment drinks I should take in, just make me sick. I've been so miserable from thisthat if I can enjoy eating, I will. I'd rather not eat than force something down I can go into a grocery store and come out with nothing, as nothing looked good.
I hurt in my upper mid back and my stomach, sometimes at the same time. I have severe reflux and have had to have my esophagus dilated many times now. Thanks for the info about the fundoplication. I've not heard a lot of positive for the pacemaker. They brought that up to me in the 90's. When I was so sick and throwing up and in pain, I was begging for a J tube and bypass my stomach. Now that's when he offered compassionate use of the cisapride before it was approved by the FDA. My life changed. You can still get it from Canada I believe. Reglan and Phenergan make me twitch. Cola syrup can help nausea. Your local pharmacist can get it. Galveston is a med I can't be without. Domperidone has been out there for years but it's impossible to get a referral to the 1 guy in town giving it, and I'm in Atlanta, GA. I just read there's a Reglan Nasal spray! I'll have to ask my MD. I really hate those people who say eat this and you'll be perfect. My weight can fluctuate 10 lbs a week depending on N&V. However I'm on the heavier side. I did lose my appetite for a year with vomiting and I lost 40lbs in a year in 2018. A hell of a way to do it. I've gained 15 back. I wish the best for anyone going through this. It can be hard to diagnose esp if you aren't a diabetic. I'll add prayers for others with GI problems.

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Replies to "I've had it on and off since HS. I was not a diabetic till my 50's...."

In my case, pain, nausea, impossible to eat a meal and actually digest it. You mentioned domperidone. I take this drug and for me it has been a miracle drug. If I am without it for more than 24 hours, I have severe stomach pain.My stomach was so bad, as seen in an endoscopy, that the Dr. begin my treatments with 6 domperidone tablets a day. Tapering down to the recommended 3 a day. I am mostly fine now except for occasional reflux.